Planning with a Special Needs Child

PLANNING

With a Special Needs Child

1. Establish a Special Needs Trust:

A Special Needs Trust (SNT) is a crucial component of planning for a child with special needs. This trust allows you to set aside funds for your child’s benefit without jeopardizing their eligibility for government assistance programs such as Medicaid or Supplemental Security Income (SSI). Funds from the trust can be used to supplement their care, covering expenses not covered by public benefits.

2. Choose a Trustee:

Selecting a trustworthy and capable trustee is essential. This person will be responsible for managing the trust and making decisions in the best interest of your child. This can be a family member, friend, or professional trustee with experience in handling special needs trusts.

3. Outline Specific Instructions in the Trust:

Clearly define how the trust funds should be used to benefit your child. This can include medical care, therapy, education, and other support services. Providing detailed instructions helps guide the trustee in meeting your child’s unique needs.

4. Update Beneficiary Designations:

Review and update the beneficiary designations on life insurance policies, retirement accounts, and other financial assets to ensure they align with your special needs planning. Naming the special needs trust as the beneficiary can help direct funds appropriately.

5. Educate Family Members:

Communicate your wishes and the details of your special needs planning to family members and potential caregivers. Providing clarity on your intentions and the role of the special needs trust can help avoid misunderstandings and conflicts.

6. Appoint a Guardian:

In your will, designate a guardian for your special needs child. This individual will assume legal responsibility for your child’s personal care if you and your child’s other parent are unable to provide care. Choose someone who understands the unique challenges and requirements of caring for a child with special needs.

7. Create a Letter of Intent:

Draft a Letter of Intent that outlines essential information about your child, including their daily routine, medical history, preferences, and any other relevant details. This document provides guidance to future caregivers and helps maintain consistency in your child’s care.

8. Plan for Government Benefits:

Understand the eligibility criteria for government benefits such as Medicaid and SSI. Work with an experienced attorney to structure your estate plan in a way that preserves your child’s eligibility for these programs while providing additional financial support through the special needs trust.

9. Coordinate with Siblings:

If you have other children, involve them in the planning process. Discuss your expectations, the role of the special needs trust, and the importance of supporting their sibling. This can foster understanding and cooperation among family members.

10. Regularly Review and Update Your Plan:

Life circumstances, financial situations, and laws can change. Regularly review and update your estate plan to ensure it remains relevant and effective. This is especially important as your special needs child’s requirements and government benefit programs may evolve over time.

11. Engage Professionals:

Work with professionals experienced in special needs planning, including attorneys, financial planners, and healthcare specialists. They can provide guidance on legal and financial matters and help you navigate the complexities of planning for a child with special needs.

12. Explore Government Programs and Services:

Research and access available government programs and services that can provide additional support for individuals with special needs. This can include educational resources, vocational training, and community-based services.

13. Create a Support Network:

Build a support network of friends, family, and professionals who can offer assistance and guidance. Connecting with local support groups or organizations focused on special needs can provide valuable resources and a sense of community.

14. Encourage Independence:

As your child grows, consider strategies to promote their independence. This may include vocational training, supported employment, and other programs that enhance their skills and abilities.